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How do the global economy and demographics shape the future healthcare landscape? How do we apply established legal and ethical concepts about medical privacy and patients’ rights in a world where highly sensitive medical information resides on complex computer networks? What are the implications of personal genome information profiles for biomedical research and personalized medicine? |
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 To explore these and other questions, Princeton, in collaboration with Johnson & Johnson, hosted its first forum on health information, genomics, and ethics on May 11. The forum, presented by the Office of the Dean for Research, was underwritten through a grant from the Johnson & Johnson family of companies. |
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Professor Uwe Reinhardt: Trends in Global Healthcare |
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 Uwe Reinhardt, the James Madison Professor of Political Economy and Professor of Economics and Public Affairs, Woodrow Wilson School, opened the forum with a discussion of the strong correlation between health spending and GDP. He noted that 40 percent of GDP will go to healthcare in 2050, yet income, not aging, will be the future driver of healthcare spending. Consumer-directed healthcare, focusing on better outcomes through preventive medicine, presents a “paradigm shift” in healthcare, focusing on lowering the probability of illness, with the help of better information technology and advances in genomics, Reinhardt said.
> Click on links below to view the video of Reinhardt’s session
(56K is recommended for dial-up users, 350K is recommended for broadband users. Trouble viewing? Click here.)
Real Media - 56K | 350K
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Professor Ed Felten: Individual Privacy in an Era of Personalized Genomics and Health Care |
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 The intersection of health information, technology, genomics, and privacy concerns was the focus of keynote speaker Ed Felten, professor of computer science and public affairs and director, Center of Information Technology Policy. Felten predicted that future healthcare privacy issues will stem from four key trends: machine learning technology, the issue of permission to access versus own healthcare data, the role of data brokers, and the growing underground trade (or “darknet”) of copyrighted content and other unauthorized information.
One of the central strategic and policy issues will be who has access to which data, Felten noted. Much effort will be spent engineering these permissions so as to enable helpful accesses and analyses while limiting privacy-damaging accesses.
> Click on links below to view the video of Felten’s session
(56K is recommended for dial-up users, 350K is recommended for broadband users. Trouble viewing? Click here.)
Real Media - 56K | 350K
Windows Media - 56K | 350K
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Panel Discussion: The Era of Personal Genome Profiles and Health Information |
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 Lee Silver, professor of molecular biology and public affairs, then moderated a lively panel discussion on trends in global healthcare and the confluence of genomics, information technology, and policy. “Revolutionary advances in molecular biology, medicine, information technology, and synthetic biology have provided powerful insights into the fundamental mechanisms of human life and how those molecular mechanisms can malfunction to cause particular disease states,” Silver noted.
The panel featured Christine Poon, vice chairman of the board for Johnson & Johnson; and Dr. Mark B. McClellan, visiting scholar, AEI-Brookings Center, and the former FDA commissioner and administrator for the Centers for Medicare and Medicaid Services. Princeton panelists Felten and Reinhardt were joined by David Botstein, the Anthony B. Evnin ’66 Professor of Genomics, professor of molecular biology, and the director of the Lewis-Sigler Institute for Integrative Genomics; Harold Shapiro, president of Princeton, emeritus, and professor of economics and public affairs at the Woodrow Wilson School; James Trussell, the John Foster Dulles Professor in International Affairs, professor of economics and public affairs at the Woodrow Wilson School, and director, Office of Population Research; and Ron Weiss, assistant professor of electrical engineering and synthetic biologist.
> Click on links below to view the video of the panel
(56K is recommended for dial-up users, 350K is recommended for broadband users. Trouble viewing? Click here.)
Real Media - 56K | 350K
Windows Media - 56K | 350K
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